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In 1995, the Baltimore Orioles boosted ALS research at Johns Hopkins through
their Cal Ripken/Lou Gehrig Fund for Neuromuscular Research. That blossomed
in 1999 into the Center for ALS Research, thanks to core financial support
from two foundations, The
Emily Davie and Joseph S. Kornfeld Foundation and the Robert
Packard Foundation for ALS Research.
The Emily Davie and Joseph S. Kornfeld Foundation was created by Emily
Davie Kornfeld, who left a substantial legacy upon her death in 1989.
The foundation supports medical research, fellowships in bioethics and
palliative care, as well as literacy programs for children in the New
York City public schools.
The Robert Packard Foundation is a non-profit volunteer organization
dedicated to ALS research. The foundation, based in San Francisco, finances
research institutions that have embraced aggressive, collaborative approaches
to finding therapies for the disease. Founded by ALS patient Robert Packard,
the foundation has received massive financial support from Packard’s
family, friends and former colleagues.
Additional support comes from private donors, federal research grants
and industry sources.
The Center translates these gifts into financial support for its researchers.
Each scientist has a contract with the Center, which specifies:
- how much a researcher’s annual funding will be, how much effort
is expected and what personnel are needed
- the nature of the scientific work that will be done over a particular
time period. The Center’s Scientific Advisory Board reviews work
annually.
- the requirement by the principal investigator and his/her postdoctoral
staff to attend nine of the 12 monthly meetings (Hopkins researchers
only) or four of the 12 meetings (for outside researchers), as well
as the annual retreat and mini-symposium.
- a requirement for an outline of ongoing research that’s not supported
by the Center.
For more information on how you can help support the Center:
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