While the Robert Packard Center exists within the Johns Hopkins University School of Medicine, roughly two-thirds of our amyotrophic lateral sclerosis (ALS) investigators are from other institutions. The Center’s director, science director, scientific advisors and operating committee advise and shape the ALS research agenda and activities.
The Robert Packard Center for ALS Research at Johns Hopkins is a science-based nonprofit whose research and administrative funding is entirely donor based.
"Bob Packard realized that no therapy existed for ALS and, even worse, that no clinical trials that could help him lay on the horizon. But he'd come back from Baltimore with something like hope, impressed by the Hopkins research effort and by a young doctor named Jeffrey Rothstein who devoted much of his life to the disease.”