ALS Alert mastheadALS Alert mastheadSpring 2003 - Science. Scope. Speed

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In This Issue:

On the Fast Track: Center Collaboration Gives Gene Therapy a Push
Last August, newspapers ran the story of an eye-wideningly successful gene therapy study in ALS mouse models.

Striking a Hopeful Note: The Einhorn Story
Talia, Baruch and their four children have always been close and needed no trauma to make them closer. Nonetheless the illness has inspired them to make the most of every passing day.

Mitochondrial Mess
A few years ago, nobody paid any mind—ALS-wise—to the tiny cell structures. “Journal editors would say ‘Your work is fine, but there’s no interest,'” shrugs Center researcher Zuoshang Xu. Now scientists believe mitochondria lie at the heart of what actually kills cells in the disease.

A Tale of Three Drugs: Where We Stand with Human Trials
With results of last year’s massive screening of existing drugs about to come out, Center scientists are ushering the most promising of the first lot into the testing pipeline.

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On Center

PGA Pro Tom Watson Raises Big Bucks for ALS Research

photo: PGA Pro Tom Watson  

You could call it the ultimate job satisfaction. As caddy for golf pro Tom Watson since 1973, Bruce Edwards has had the good fortune to watch Watson nail 35 PGA tournaments. Now Watson is hosting a brand new tournament—the Nov. 3 Bob Packard Cup—to help his loyal caddy and others conquer ALS. Organizers of the event at Stanford University’s golf course anticipate that the tournament will raise at least $500,000 for research at the Packard Center.


Edwards was diagnosed with ALS in January of 2003. Back in the fall of 2002, while caddying at the Champions Tour Championship, he felt his left hand cramping and had trouble speaking clearly. Since his diagnosis, Edwards and his family have supported ALS research fund-raising. The Edwardses live in Florida with their four children.

Joining Watson as co-host of the Packard Cup event is longtime friend Frank “Sandy” Tatum Jr., an NCAA national champion in golf from Stanford in the 1930s and former president of the U.S. Golf Association. Watson, Tatum and organizers hope the money raised will accelerate the development of effective therapies and lead to a cure for ALS.

Hurricane Blues
Organizers of the Third Annual Packard Center ALS Research Symposium in Baltimore had to make a decision this fall as Hurricane Isabel loomed over the mid-Atlantic region. In the end they cancelled the event. It turned out to be a wise decision. Angry Isabel left Baltimore’s harbor with widespread power outages and flooding.

Undeterred, the ALS conference hosts rescheduled the event for March 26-27, 2004. Sponsored by the Playing to Win for Life Foundation, founded by board member Bob Basten, the symposium assembles researchers from numerous institutions worldwide to discuss latest advances in ALS research.

The upcoming event will also honor the 2003 Partners in Collaboration: the Emily Davie and Joseph S. Kornfeld Foundation, MDA’s Wings Over Wall Street, and Ride for Life.

“I am committed to helping Bruce and others fight this devastating disease,” says Watson. “The Packard Center is dedicated to translating basic research into real therapy for today’s patients.”

Packard Foundation board member Ken Hagen, who is coordinating the event, is delighted with Watson’s commitment: “Tom Watson is a champion on and off the golf course. We are thrilled he is helping in our battle to find a cure for this terrible disease.”

For more information about future Bob Packard Cup events, including sponsorship and volunteer opportunities, contact Ken Hagen at Robert Packard Foundation, 131 Cherry Street, San Francisco, CA 94118, hagens@pacbell.net, or at 866-834-4329.

 

 


Next > Speaker's Corner
Merit Cudkowicz, M.D., an expert in designing clinical trials, answers our questions about ALS drug trials.


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Special Features:

Vantage Point
Why would you study a form of the disease that the vast majority of ALS sufferers don’t have?

On Center
PGA Pro Tom Watson Raises Big Bucks for ALS Research

Speaker's Corner
Merit Cudkowicz, M.D., an expert in designing clinical trials, answers our questions about ALS drug trials.

From the Clinic
It’s hard to imagine some patients becoming more fit for a time after being diagnosed with ALS, but that doesn’t surprise Brenda Shaeffer, physical therapist with the Johns Hopkins ALS Clinic.

A Friend Indeed
Just Cure It. Mike.

The Big Board
Three Strikes, Not Out

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