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GRANT AWARDS FY04
| 14 new projects | $1,385,375 |
| 2 renewed projects | $ 186,359 |
| Total | $1,571,734 |
FUND RAISING FY04
| Unrestricted | |
| Pledge payments | $1,000,000 |
| Events | $1,492,924 |
| Gifts | $ 637,672 |
| Endowment payout | $ 245,977 |
| Total | $3,376,573 |
Endowment
| Current market value (as of 6/30/04) |
$5,575,528 |
Finding a cure for ALS takes more than knowledge. It requires focus. And it requires a certain synergy among scientists, patients and their families, grant-givers and others who want the disease to end now.
That’s what drives the Robert Packard Center for ALS Research—from
hard work in the lab to its fund-raising events around the country.
Extraordinary things happen when people with ability, resources and passion
aim at a worthwhile target. This year, the Packard Center celebrates achievements
that wouldn’t have occurred without that pulling together, that purpose.
In this annual report, you’ll read about events that thrust ALS into the limelight. At least two celebrities gave the Packard Center a major boost. Tony Bennett performed to a packed symphony hall and helped raise $250,000 for the Center. And Tom Watson, whose lifelong caddy, Bruce Edwards, was dying of ALS at the time, helped raise more than $500,000 for ALS research at the Packard Cup tournament in San Francisco.
But just as passionately, people whose names aren’t in the headlines advance our cause. Read about Christy Sloan, who, from her mountain home in North Carolina, orchestrated events that netted more than $100,000. West Virginia’s Mike Dawley inspired walkers and runners to participate in his “Just Cure It” marathons, raising more than $60,000. Once again, MDA’s Wings Over Wall Street, now in its third year, surpassed their fund-raising goals, boasting a $512,828 gift for the Center. There’s the poignant tale of David Deutsch and students from Long Island’s Northport High, who represent one of the largest community contributions in the Center’s history.
The pages that follow tell of other individuals, foundations and corporations and the fine research made possible by their generosity. In 2004, the Center awarded more than $1.5 million to fund 16 projects. The investment is already reaping dividends in terms of new discoveries.
Packard Center scientists are regularly tapped to join national and international ALS symposia, in part because our scientific advisory board keeps them on the promising research paths. Since last year, for example, we’ve placed new emphasis on understanding nerve repair and regrowth, on blocking cell death, on stem cell research and on uncovering natural cell protective pathways. And all the time, we’re developing new therapeutics.
This coming year we’ll continue to work together, to sharpen our aim. We’ll do what it takes to cure ALS.