The Robert Packard Center for ALS Research at Johns Hopkins
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ALS Clinical Care Team:

Lora L. Clawson, MSN, CRNP, Director of ALS Clinical Services

Virginia M. Hoffman, Clinical Administrative Coordinator

Richard M. Kimball, MSN/MPH, APRN, Clinical Research Program Coordinator

Dave Miller, MDA Health Services Coordinator

Physical Therapist: Laurie Sweet, PT

Occupational Therapist: Kelly Showalter, OTR

Speech Pathologists: Community-based speech language pathologists

Orthotist: Alliance Orthopedic Labs and C. D. Denison Orthotics & Prosthetics

Durable Medical Equipment: Chesapeake Rehab 

Neurologists: Vinay Chaudhry, MBBS; Andrea Corse, MD; David Cornblath, MD; Thomas Crawford, MD; Daniel Drachman, MD; John W. Griffin, MD; Argye Hillis, MD; Ahmet Hoke, MD, PhD; Nicholas J. Maragakis, MD; Richard O’Brien, MD; Jeffrey D. Rothstein, MD, PhD; Kathryn Wagner, MD, PhD

Pulmonologists: Noah Lechtzin, MD; Charles Wiener, MD

Gastroenterologists: Linda Lee, MD 


MDA-Sponsored Support Groups

Baltimore Area

Patient and Family Support Group

The Keswick Home
700 W. 40th St.
Baltimore, MD 21211

  • This support group was formed in 1983 and features an educationally based format with expert speakers.
  • Held the 2nd Thursday of each month (September-May)
  • Facilitator – Lora L. Clawson, MSN, CRNP

Caregivers’ Support Groups

St. Johns United Church of Christ
S. Rolling Rd. at Wilkens Ave.
Catonsville, MD 21228

Or

The Hampton House
204 E. Joppa Rd.
Towson, MD 21286

  • Held on the 2nd Saturday of every other month.
  • This support group was formed in 1990 and offers caregivers a format for mutual sharing and support.
  • Facilitator – Virginia Hoffman, ALS Clinical Administrative Assistant and former ALS caregiver

Eastern Shore Area

Patient and Family Support Group & Caregivers’ Support Group

Peninsula Regional Medical Center
Avery Hall Auditorium
100 E. Carroll St .
Salisbury, MD 21801

  • Held on the 2nd Saturday of every other month.
  • This support group was formed in 2002 and offers simultaneous educational and caregivers’ support groups.
  • Facilitator – Dave Miller, MDA Health Services Coordinator & Virginia Hoffman, ALS Clinical Administrative Assistant and former ALS caregiver
For more information or a meeting schedule please call Dave Miller at
410-494-7106.

 

For information on clinical trials and the ALS Clinic at Johns Hopkins, contact:

Lora Clawson, MSN, CRNP
Director of ALS Clinical Services
Tel: 410-955-8511
lclawson@jhmi.edu

To make an appointment, or for questions relating to ALS research, contact:

DeeAnna Fearson
Administrative Assistant to Dr. Jeffrey Rothstein, Director of the Packard Center
Johns Hopkins Neurology
600 N. Wolfe Street | Meyer 6-113
Baltimore, MD 21287-5953
Tel: 410-614-5972 | Fax: 410-955-0672
dfearso1@jhmi.edu





 


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