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Most ALS patients, averaging 55 years of age, do not live beyond five years after diagnosis. Through your tax-deductible ALS donation, we can improve the quality of patients’ lives and work toward a cure.

Research in ALS, a disease where subtle things go awry at the gene or cell level, requires a great deal in the way of sophisticated technology and unusually skilled scientists. Donations through your ALS fundraising efforts, events, ALS memorial gifts and planned giving are essential to supporting accelerated ALS research being undertaken in labs all around the world. Such research is costly and government and corporate support of ALS is limited. Your help brings us closer to these important goals.

Online Donations

A board of external experts (Scientific Advisory Board) meets regularly to discuss the research program and determine which projects must be started to answer the most critical questions regarding ALS. This group also prioritizes therapeutic projects that can benefit patients most in the short term.
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Event Giving

Grants are short, specifically targeted to outstanding scientists capable of getting the job done, and are funded in a timeline of four to six weeks. Compare that to the peer review process of NIH, which takes a minimum of nine months to obtain funding. ALS fundraising events provide opportunities for immediate action and represent half of the Center’s revenues

Learn more about having an event to benefit the packard center

Call Emily Ehehalt at 410-516-6731 or contact via email

Major & Planned Giving

There are many creative gift-planning strategies that may allow you to give more than you ever thought possible and, at the same time, create tax advantages for you. Planned or deferred gift options include bequests and gifts that can produce an income stream to you such as a charitable gift annuity or charitable trust.

Call Emily Ehehalt at 410-516-6731 or contact via email

Honorary & Memorial Gifts

Celebrate the life of a loved one through honorary gifts or ALS memorial gifts. With your donation, you can provide us with the name of the person you are celebrating and we will notify that person directly or a family member about your gift of support toward ALS research. Checks may be sent to:

The Packard Center for ALS Research at Johns Hopkins, Attn: Jolynn Hall, 100 North Charles Street, Suite 436, Baltimore, MD 21201Call Jolynn Hall at 410-516-6236 or contact via email