Fifteen years later, Robert Packard's legacy lives on with his daughter.
“A germ of an idea kept my Dad going throughout his final year with ALS—he would do everything in his power to enable Dr. Rothstein and other scientists to find a cure, so that other families wouldn’t be torn apart by this disease like ours had been.” Lauren Packard, daughter of Robert Packard
Robert Packard, at age 41 and at the high point of his career and family life, learned he had ALS. After visiting Johns Hopkins in the fall of 1999, he realized that no therapy existed for ALS and, even worse, that there were no clinical trials on the horizon that could help him. But Packard left Baltimore with something else – hope. He saw a way to fight ALS and create something positive in the midst of despair. In an effort led by his family, friends and colleagues, Packard helped launch a novel attack on the disease by providing initial funding for what became the Robert Packard Center for ALS Research at Johns Hopkins in 2000.
Fifteen years later, his daughter, Lauren Packard, works as an advocate for the Center to help keep his dream of a an end to ALS alive. The Robert Packard Center for ALS Research represents the lasting legacy of Packard’s drive and determination, focused on curing a cruel, fatal disease.