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Packard Center for ALS Research at Johns Hopkins

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Get Involved

You can make a difference in the lives of people affected by ALS. There are many ways to get involved and join in the fight against this debilitating disease, also known as Lou Gehrig’s disease, by taking an active role in ALS fundraising.

You can participate in the Packard Center’s signature Fiesta 5K & Fun Run, host your own ALS fundraising event, attend an event, or volunteer your time. The Packard Center relies on friends throughout the country and internationally to spread our mission and raise crucial funds for ALS research.

More than 50 percent of the Center’s revenue comes from events hosted by friends of the Packard Center. You are a critical partner in the future of ALS patients in supporting ALS research, which drives the science behind ALS clinical trials and treatments. There is a need. There is an opportunity. There is a way you can help.

Partners in Collaboration

Every spring ALS supporters, scientists, patients, volunteers, clinicians, and staff of the Packard Center gather to celebrate special friends of the Packard Center. On April 1, more than 100 guests gathered for the Annual Partners in Collaboration reception and awards presentation. This event honors those who have gone above and beyond the call of duty to support the Packard Center through efforts in ALS research, ALS fundraising, ALS events and a commitment to hope. Our 2009 honorees included Bully! Entertainment, Mid-Atlantic Waterproofing, Bruce Thompson, and Charlotte Hetterick.

Bully! Entertainment

Bully! Entertainment, a commercial and entertainment media production firm in Baltimore, was honored for its creative contributions to the Fiesta 5K. Carlson Bull, one of the firm’s principals, was recruited to help design materials for the inaugural race two years ago. He and his team created Pepper Pete, the Fiesta 5K’s colorful mascot, as well as TV spots and print pieces that continue to promote what has become a signature fundraiser for the Center.

Mid-Atlantic Waterproofing

Mid-Atlantic Waterproofing, the nation’s largest privately owned waterproofing organization, received the award for designating the Center as its charity of choice last year. For every waterproofing contract signed during a 60-day period in 2008, Mid-Atlantic donated a portion of the proceeds to the Center. At the end of the campaign, they presented a check to the Packard Center for $40,000.

Bruce Thompson

Bruce Thompson, a well-known developer in the Virginia Beach area, was recognized for all that he and his family contributed to the ALS Association’s Walk to Defeat ALS event in Virginia Beach last fall. The JT Walk Team – 3,600-plus members strong – was formed to honor Thompson’s son Josh, diagnosed with ALS at the age of 33. Not only was the JT Walk Team the largest group of its kind, but it also raised a record-breaking $575,000, 40 percent of which Thompson designated for the Center.

Charlotte Hetterick, Volunteer of the Year

Charlotte Hetterick was recognized as the Volunteer of the Year. Hetterick is a fitness instructor and owner of Interactive Fitness in Timonium, Maryland. She became involved with the Center after her close friend Eric Navarro was diagnosed with ALS. Hetterick organized her own fundraisers and threw her full support behind the inaugural Fiesta 5K. Passionate about fitness and finding a cure for ALS, she continues to secure all levels of support for the race and the Center.


Johns Hopkins School of Medicine

Contact The Packard Center

© 2014, The Robert Packard Center for ALS Research at Johns Hopkins. All rights reserved.

5801 Smith Avenue, McAuley Suite 110,
Baltimore, Maryland 21209, USA