Living with ALS

The Packard Center is an ALS research and support organization; we know there are many people living with ALS, also known as Lou Gehrig’s disease, for whom our research progress may come too late. We want to help people live with ALS for as long and as well as they can and provide those affected by ALS with ways to get involved in the fight against it.

We are working to provide ALS support through global scientific research. Our Center acts as a one-stop collection of ALS resources so scientists can collaborate together and so that people can learn about the latest ALS clinical trials and treatment options. Through ALS education, a dedication to science and an active fundraising program, we are committed to providing the ALS community with a source of – and a resource for – hope.

ALS Community Resources

PALS Community for ALS Support

• Patients Like Me
• ALS FORUMS - A Support Community for Individuals Affected by ALS/MND
• Focus on ALS – A Site Created by a Person with ALS for People with ALS

ALS Clinical Trials

• Johns Hopkins Multidisciplinary ALS Clinic
• Muscular Dystrophy Association
• ALS Association
• National Institutes of Health

Stem Cell Information & Advocacy

• Stem Cell Research at Johns Hopkins
• Coalition for the Advancement of Medical Research
• Stem Cell Information – The Official NIH Resource
• Genetics Policy Institute / Stem Cell Action

Patient & Family Support

• Muscular Dystrophy Association
• The ALS Association
• Ride for Life Online
• Project A.L.S.
• Prize4Life
• The ALS Society of Canada
• International Alliance of ALS/MND Associations