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Packard Center for ALS Research at Johns Hopkins

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Living with ALS

The Packard Center is an ALS research and support organization; we know there are many people living with ALS, also known as Lou Gehrig’s disease, for whom our research progress may come too late. We want to help people live with ALS for as long and as well as they can and provide those affected by ALS with ways to get involved in the fight against it.

We are working to provide ALS support through global scientific research. Our Center acts as a one-stop collection of ALS resources so scientists can collaborate together and so that people can learn about the latest ALS clinical trials and treatment options. Through ALS education, a dedication to science and an active fundraising program, we are committed to providing the ALS community with a source of – and a resource for – hope.

ALS Community Resources

PALS Community for ALS Support

ALS Clinical Trials

Stem Cell Information & Advocacy

Patient & Family Support

From Our Experts

Current ALS Clinical Trials

  • Skin biopsies to generate cell lines for study of ALS

  • A Longitudinal Study of Cognition and Behavior in ALS

  • A Multicenter Study for the Validation of ALS Biomarkers

  • Electrical impedance myography as an outcome measure in ALS clinical trials

  • Quality of Life and Caregiver Burden in ALS

Johns Hopkins School of Medicine

Contact The Packard Center

© 2014, The Robert Packard Center for ALS Research at Johns Hopkins. All rights reserved.

5801 Smith Avenue, McAuley Suite 110,
Baltimore, Maryland 21209, USA