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ABOUT THE PACKARD CENTER

Packard Center for ALS Research at Johns Hopkins

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    % OF THE CENTER’S REVENUE COMES FROM EVENTS HOSTED BY PATIENTS, FRIENDS AND FAMILY.

ALS Treatment

Currently, amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, has no cure. The FDA-approved drug, Rilutek, extends survival somewhat. 

Patients suffering from the disease can maximize their abilities and be made more comfortable with the following treatment or therapeutic options:

  • • Medications to relieve painful muscle cramps, excess salivation and other symptoms
  • • Heat or whirlpool therapy to relieve muscle cramping
  • • Exercise, though recommended in moderation, to help maintain muscle strength and function
  • • Physical therapy to maintain mobility and ease the discomfort of muscle stiffness, cramps and fluid retention
  • • Nutritional counseling to promote optimal calories and dietary balance and to offer diet-based help when swallowing becomes difficult
  • • Speech therapy to maintain as many verbal communication skills as possible and communication training to offer non-verbal techniques
  • • Devices such as splints, corrective braces, grab bars, reach-extenders, etc. to help with daily activities such as dressing, eating, using the toilet and bathing
  • • Special equipment such as wheelchairs, electric beds or mattresses to maximize functional independence

If you’re looking to confirm an ALS diagnosis, learn more about ALS clinical trials or seek medical care for the disease, contact the Johns Hopkins Multidisciplinary ALS Clinic. ALS scientists at the Packard Center for ALS Research at Johns Hopkins are working aggressively through targeted research projects to uncover new ALS treatments and to find a cure.

From Our Experts

Current ALS Clinical Trials

  • Skin biopsies to generate cell lines for study of ALS

  • A Longitudinal Study of Cognition and Behavior in ALS

  • A Multicenter Study for the Validation of ALS Biomarkers

  • Electrical impedance myography as an outcome measure in ALS clinical trials

  • Quality of Life and Caregiver Burden in ALS

Johns Hopkins School of Medicine

Contact The Packard Center

© 2014, The Robert Packard Center for ALS Research at Johns Hopkins. All rights reserved.

5801 Smith Avenue, McAuley Suite 110,
Baltimore, Maryland 21209, USA