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Patrick O'Brien
One man’s accelerated perspective on life…
by Aaron Henkin
Patrick O'Brien has experienced what he calls 'enlightenment by shotgun.' In 2005, he was diagnosed with a debilitating terminal illness: ALS, or Lou Gehrig's disease. But instead of giving in to resentment, he's made the decision to live every remaining moment as beautifully as possible.
PLAY AUDIO
The Signal, WYPR, August 31, 2007
© Copyright 2007, WYPR
| Packard Center Director Jeff Rothstein is also interviewed on The Signal (see Looking For a Cure below). As a clear voice of current science, he'll describe the newest directions of stem cell and gene therapy research. |
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Looking For a Cure
A conversation with Dr. Jeffrey Rothstein
by Aaron Henkin
ALS sufferers are told by doctors that they have two to five years to live. But neuroscientist Jeffrey Rothstein has made it his life's work to extend that span as much as possible. Dr. Rothstein hopes that in his lifetime we'll discover a way to halt the progression of ALS, and he joins us for a talk about how it might happen.
PLAY AUDIO
The Signal, WYPR, August 31, 2007
© Copyright 2007, WYPR |
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Tom Watson speaks on behalf of the Packard Center >>Play Video |
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A Midwinter Night's Dream marketing video (YouTube) >>Play Video
Visit www.amnd.org for more information on A Midwinter Night's Dream, a fundraiser to benefit the Packard Center and the ALS community. |
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PGA champion Tom Watson and others raise awareness, money for ALS research
by Fraser Smith (audio)
COCKEYSVILLE, MD (September 23, 2005) · ALS, the mysterious nerve disorder that killed Lou Gehrig and cripples thousands, has been called an orphan disease. No more. WYPR's news director Fraser Smith reports.
© Copyright 2005, WYPR |
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NPR Commentary: ALS Ends Running Days
by Darcy Wakefield (audio)
All Things Considered, December 16, 2003 · A few months ago, commentator Darcy Wakefield was diagnosed with ALS, also known as Lou Gehrig's Disease, at the age of 33. It has brought many changes in her life, but there's one that she's experienced most vividly: no longer running.
© Copyright 2005, NPR |
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NPR Commentary: Life with Lou Gehrig's Disease
by Darcy Wakefield (audio)
All Things Considered, September 19, 2005 · About two years ago, commentator Darcy Wakefield was diagnosed with ALS, or Lou Gehrig's disease, at age 33. A few months later, she wrote a commentary about running -- and losing her ability to do it. Since then, her disease has progressed, sometimes in ways she didn't anticipate. Her sister Betsy reads this commentary for her. Wakefield has just released a book, I Remember Running.
© Copyright 2005, NPR |
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Audio Essay: FALLING (requires Windows Media Player)
By: Darcy Wakefield (audio)
Maine Public Radio, December 12, 2005 · This essay from Darcy Wakefield's series of audio journal entries on living with ALS first aired in June of 2004, and later won a national award from Public Radio News Directors Incorporated. Other journal entries are available online at http://www.mpbn.net/radio/index.html.
© Copyright 2005, Maine Public Broadcasting Network |
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The following are direct links to large digital video files. Files may start playing soon after you click; alternatively you can right-click, choose "save as" and download the file to your computer.
These files are very large and may be impractical to view or download over a slow internet connection. |
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Interview of Packard Center Director Dr. Jeffrey Rothstein, by George S. Burrows, president and founder of Regenerative Medicine Awareness, LLC. (February 2005)
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ALS Patient Advocates' presentation given by Jeannie Fontana, MD, PhD to the California ICOC (Independent Citizens’ Oversight Committee). Courtesy of Regenerative Medicine Awareness. (February 2005)
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