The Robert Packard Center for ALS Research at Johns Hopkins
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May 13, 2002

Michael P. Beier Joins Center for ALS Research Board of Governors
The Center for ALS Research at Johns Hopkins is pleased to announce that Michael Patrick Beier has agreed to serve as a member of the Board of Governors from April 2002 to March 2005.

Beier, director of equity trading for Credit Suisse/First Boston, was diagnosed with ALS in December 2000. Since that time, he has committed himself to increasing awareness of the disease and to raising money for ALS research. His determination has resulted in highly effective fund raising efforts, as he was largely responsible for the great success of MDA's inaugural "Wings of Hope" gala that raised nearly $700,000. Consequently, Beier will chair this year's event, "Wings Over Wall Street," and is determined to surpass last year's grand total.

Continuing his commitment, Beier is also a committee member of the 5th Annual Ride for Life, a grassroots motorcade of patients in wheelchairs from Montauk, Long Island, to New York city. The Ride benefits ALS research and treatment and was recently featured on NBC's Today Show.

Beier and his wife, Theresa, have two children, ages 5 and 3. His concern and frustration are clear in his comments in the Wings of Hope's event journal: "I often feel more fortunate than others affected by this disease since I can presently walk, talk and breathe on my own. However, without a cure, I know that my limbs, speech, and breath will ultimately fail. ALS is a disease that has made me angry-angry at the ways it affects me, the thousands of others diagnosed and all of our loved ones. Since my diagnosis, I have vowed to do anything possible to help stop this disease so my children will never be threatened."

The Center for ALS Research at Johns Hopkins is a collaboration of scientists worldwide working aggressively and rapidly to develop new treatments and find a cure for ALS. It's the only institution of its kind dedicated solely to the disease. Research conducted by the Center is meant to translate from the laboratory bench to the clinic as quickly as possible.

The nature of ALS shapes the Center's results-oriented scientific approach. ALS is a devastating, progressive neuromuscular disease that causes complete paralysis and loss of function -- including the ability to eat, speak and breathe. ALS progresses quickly and is not curable. Most patients die within five years of diagnosis.

For more information about the Center for ALS Research at Johns Hopkins call 410-502-7677.


Recent news from the Robert Packard Center for ALS Research:
In ALS, It’s Not the Number of Ailing Astrocytes That Counts - June 12, 2008
Leaky Blood Vessels Add To ALS Damage, Could Offer New Repair Site - June 10, 2008
William H. Adams Foundation Pumps New Energy, Funds into Search for ALS Cure - May 6, 2008
Tell-Tale Protein Clumping in ALS is Less Complex Than Expected - April 10, 2008

ALS Mouse Study Highlights Astrocytes' Strong Potential as Therapy Target - February 7, 2008

Exciting New Human ALS Trial: Lithium and Riluzole - February 7, 2008
ALS Treatment: A Matter of Cleaning House? - December 19, 2007

New Study Brings What Goes Wrong in Inherited ALS into Focus - September 18, 2007

New ALS Protein Could Be a Keystone - August 9, 2007
Muscles More Than Passive Victims in ALS, Study Suggests - June 29, 2007
Saer and O’Neill Named Packard Center Board Co-Chairs - June 28, 2007

Self-Attack? Self-Repair? First Real Look at Gene Activity in ALS Models Sparks Thirst for Answers - May 3, 2007

Model of Accelerated Familial ALS Sheds Light on Disease Process - April 6, 2007
Early News From First Large Search for Sporadic ALS Genes - February 20, 2007
Human Stem Cell Transplants Mature Into Neurons and Make Contacts in Rat Spinal Cord - February 14, 2007




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