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June 16, 2004

Board Member Laurie S. Russell Dies of ALS

photo: With deep sadness, The Robert Packard Center for ALS at Johns Hopkins announces the passing of ALS board member Laurie Smullin Russell. She was 58.

With deep sadness, The Robert Packard Center for ALS at Johns Hopkins announces the passing of ALS board member Laurie Smullin Russell. She was 58.

A former nurse, Russell was assistant director of development at Union Memorial Hospital in Baltimore and volunteered her skills for numerous civic and cultural organizations.

Shortly after being diagnosed with ALS about four years ago, Russell joined the Packard Center board of governors and founded a development committee, which she headed for a year. In a short time, she helped raise more than $5 million to cover 29 grants for Packard Center investigators.

Inspired by her fundraising efforts, 11 friends formed “The Laurettes,” a group organized to support the Center. In June 2001, they sponsored a dinner dance and silent auction in Russell’s honor that raised more than $120,000 for the Center. Proceeds were used to purchase an ultrahigh-technology confocal microscope, which lifts studies of ALS-damaged tissues to new levels of clarity, Center researchers say. As Russell’s disease worsened, the Laurettes organized a rotation of 70 women to bring her meals, run errands and spend time with her.
In 2003, Russell was named the Muscular Dystrophy Association’s winner of the Maryland Personal Achievement Award for her efforts in raising ALS awareness.

“She was an amazing person,” said Kathy Davis, administrative director of the Packard Center. “It’s a very harsh disease, and she accepted it so gracefully. She really believed that her work would make a difference.”
Born Laurie Smullin in Watertown, N.Y., and raised in Wilmington, Del., she earned a bachelor’s degree in nursing in 1967 from the University of Pennsylvania. She worked as a clinical nurse and taught at Pennsylvania Hospital in Philadelphia for seven years.

She married John R. Rockwell in 1970, and the couple moved to Baltimore in 1982. The marriage ended in divorce in 1990, and she married business and real estate executive T. Edgie Russell III in 1994.
From 1992-1995, she was assistant director of development at Union Memorial Hospital in Baltimore. There she was responsible for planning fundraising events and launched an annual golf tournament that raises $75,000 a year for the hospital’s foundation.
She later became a member of the Johns Hopkins Women’s Board, which organizes fundraisers for the Johns Hopkins Hospital.

Passionate about music, Russell was president of the Baltimore Opera Guild for three years and served on the Opera Company board for six years, raising thousands of dollars for educational outreach activities. She sang in the Junior League of Baltimore’s Larks women’s singing group.

She was an active member of Old St. Paul’s Episcopal Church and started a prayer group in her home. At her death, she was surrounded by family and close friends. In addition to her husband, she is survived by two sons, Scott Rockwell of Baltimore and Jordan Rockwell of Westwood, Calif.; a stepson, Ted Russell of Baltimore; a stepdaughter, Neal Russell of Boca Raton, Fla.; her mother, Doris E. Smullin of Baltimore, and a sister, Ricky Daly of Breckenridge, Colo.

Russell was honored last winter at the Packard Center. Despite being confined to a wheelchair and having difficulty speaking, Russell thanked donors and the Packard Center board for their “dedication, enthusiasm and energy for raising funds to support the research that will one day find a cure for this devastating disease.” She called the researchers “the unsung heroes in these efforts.”

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