Announcement

February 24, 2005

Clinical Research on Familial ALS

From the ALS Center at Emory University Jonathan D. Glass, M.D., Principal Investigator

Purpose of Study:
Familial ALS represents about 10% of cases of ALS worldwide. Familial ALS is defined as ALS that is directly inherited within a family. When a family has two or more family members with ALS, then Familial ALS is likely.

There is reason to suspect that people with Familial ALS may respond differently to treatment than those with non-familial ALS. The ALS Center at Emory University is conducting a research study to answer this question.

We are gathering information on the number of persons in families with Familial ALS. This information will be used to design a research trial directed at possibly delaying or preventing ALS in those at risk for the disease.

Who Can Participate?
We are looking for individuals in families with ALS, including all family members who may be at risk. You must be over 18 years old to participate.

What is Required?
You can begin your participation in this study by calling The ALS Center at Emory University toll-free at 888-413-9315.

A nurse will contact you and ask you questions about ALS and your family. This conversation will take about 20 minutes. You will be asked if you would consider being contacted in the future. Participation, of course, is voluntary.

If you believe you have familial ALS or may be at risk for familial ALS (two or more family members with ALS), and you are interested in learning more about this study, please call the ALS Center at Emory University, toll free 888-413-9315.

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